I was 11 months old when I had my first open-heart surgery, and 13 years old when I had my second. I would first like to describe exactly what it’s like to have heart surgery, and then explain what was wrong with my heart.
What Heart Surgery is Like
I had my surgery in Minneapolis and arrived there by ambulance on a Friday. Since it was a Friday, they didn’t want to perform the operation with weekend staff there, and since I was stable, I waited until Monday to have the surgery.
I waited, all right—and with no food or drink. That was probably the worst part about pre-surgery. If I had a nice nurse, she would give me crushed ice with a tiny bit of apple juice. I got very pale and thin. I was told that I was having congestive heart failure. That’s only a big deal if it continues without care. It didn’t hurt, and I wasn’t throwing up anymore (thanks to the drugs).
On Monday October 11, 2009 I had open-heart surgery. I imagined that I would be wheeled down a scary corridor and into the operating room and I would get progressively more and more scared. That’s not how it works at all. They put something in my IV that made me fall asleep in my room while they were prepping my bed. I don’t have memories of even leaving my room.
They weren’t sure what kind of damage had been done in my heart, but I came out of a five hour operation without needing a steel valve. They used Teflon to patch the damaged area and reinforce it. That part of my heart is now super strong and will never break again. When you wake up from surgery, you have three IVs in you at once. One in your neck with a catheter that goes to your heart; the other in an artery in your arm; and the last is the one is in your other arm—the same one you have when you’re first admitted to the hospital where they put the medications and IV fluids in. The coolest thing is the two tubes that come out of your abdomen right below the incision. They remove the fluid from around your heart. They don’t hurt at all, and it actually felt pretty cool to have them pulled out. J You also have a catheter, which is not a comfortable thing, but it’s better than a bed pan! The last large tube coming out of your body is a ventilator. It’s used to make sure you breathe properly during and after the surgery, and it’s taken out the day after you have the operation. It was uncomfortable, but not painful. It wasn’t pleasant to have pulled out, but after it’s over, it’s over.
While you’re under, they put Vaseline over your eyes so they don’t dry out. When I woke up in my hospital room, I still had it on my eyes and I couldn’t see anything. You also don’t have motor abilities, so I couldn’t reach my arms up to wipe my eyes. I woke up only hours after I came out of the surgery, then I promptly went back to sleep and woke up again in the middle of that night. I was doped up on morphine, and fondly remember the night after my surgery and smile—it was a lot of fun! But I didn’t have morphine for more than 1-2 days post-surgery.
Recovery was difficult, but faster than you might imagine. I had surgery on Monday, went home on Friday, and went to a Halloween party on Saturday. Everything exhausted me, but I could get around slowly. When they operate on a heart, they have to cut through your sternum, and when they’re done, they stitch it closed with wire. While your bone is growing back together, it is extremely painful. It’s uncomfortable to sleep, and reaching, bending, picking things up and carrying things hurt like crazy. But within a few months you’re back to normal with a sweet battle wound down your front that’s hard to hide and makes all your v neck shirts look crooked. For the record, I don’t mind my scar. I’ve had a scar for as long as I remember—it’s a part of me. I don’t know what I’ll do when it fades!
Why I had Heart Surgery
I was born with a hole in my heart. More specifically, it was a hole in the interventricular septum—the wall between the two bottom chambers of the heart. I had surgery when I was 11 months old to stitch up that hole. What we didn’t know back then is that the wall wasn’t quite as strong as it should have been. Your aorta comes down into your heart and shares some tissue with the interventricular septum. Right above the aortic valve, there are three little sinuses. They’re really just small bulges in the base of the aorta. It’s called Sinus of Valsalva. Well, the weak (or thin) wall of my heart included that sinus, and by the time I was 13, an aneurysm had formed.
I had my burst aneurysm when I was 13 years old. At least, that’s when it burst. I don’t know if I had the aneurysm before then or not. Here’s what an aneurysm is: It’s an abnormal bulging in an artery. You have arteries in your brain, heart, abdomen, and legs. Aneurysms become especially dangerous when they burst.
My aneurysm was not typical, and lucky for me it wasn’t.
This is what happened when my aneurysm burst: I was running my dog through an agility course one Thursday night. After I ran the course, I noticed that my heart hadn’t slowed down quite right. I told my mom, and that night I ate dinner and went to bed. The next morning I woke up, and my resting heart rate was 160 beats per minute. When my mother and sisters saw me, they were shocked and said they could see my heart beating through my chest. It was pretty serious. So everyone went to school and work like normal, and my dad took me to the ER. They took the longest ultrasound in the history of mankind, and sent me off in an ambulance to Minneapolis Children’s Hospital. By this point, my body didn’t know how to react, and I was vomiting. I wasn’t in any pain. I was completely coherent. I was very tired.
When I arrived in the Twin Cities, my doctor told me that I had a burst aneurysm in my heart. He said that all they knew about burst aneurysms it that although they are very rare, they seem to occur mostly in middle-aged Asian men. I was a young, white girl. He said that I would need to have surgery to repair it. So I did. I never thought about any risk involved. I wasn’t even scared. I trusted my doctors, and everything came out A-OK!